What is the National Data Opt Out?
The National Data Opt-Out allows patients to opt out of their confidential information being used beyond their direct care for certain research and planning purposes.
What does it apply to?
The national data opt-out applies to the use of confidential patient information for certain
types of national research and planning purposes.
What data is not covered by this opt-out choice?
data that is shared for your individual care
where there is a risk to public health or data is required for monitoring and control of infectious diseases, for example during pandemic
there is an overriding public interest, for example: the reporting of gun wounds in line with GMC guidance
here is a legal requirement to share information, for example: the investigations by regulators of professionals (eg General Medical Council) investigating a registered doctors fitness to practice
NHS fraud investigations notification of food poisoning
you have consented to take part in a specific project, including practice based research where anonymised data is used.
What are we doing at Modality Partnership about the National Data Opt Out?
- We have updated privacy notices to reflect the introduction of the National Data Opt out.
- We have displayed posters and distributed information leaflets
- We have updated our Privacy Policy
- We have reviewed how we use your information to see if this is affected by the National Data Opt Out
- We have provided support and assistance to our staff to understand what this is
Does the opt out apply to data that is being used across Modality Partnership?
The National Data Opt out does not apply to data held at Modality Partnership. Our records
and processing of data do not identify any data flows which are impacted by this.
You have a choice
If you are happy for your confidential patient information to be used for national research and planning, you do not need to do anything.
If you do not want your confidential patient information to be used for national research and planning, you can choose to opt out securely via one of the below options:
Online: https://www.nhs.uk/your-nhs-data-matters/manage-your-choice/
To make a choice for yourself a child under the age of 13 or someone else:
https://www.nhs.uk/your-nhs-data-matters/manage-your-choice/other-ways-to-manage-yourchoice/ sending the appropriate forms via post to ‘National Data Opt Out, Contact Centre,
NHS Digital.
HM Government, 7 and 8, Wellington Place, Leeds, LS1 4AP’ or via email enquiries@nhsdigital.nhs.uk
Via the NHS App: IOS https://apps.apple.com/gb/app/nhs-app/id1388411277 or Android https://play.google.com/store/apps/details?id=com.nhs.online.nhsonline
Telephone: NHS Digital Contact Centre phone number: 0300 303 5678 – Monday to Friday,
9am to 5pm (excluding bank holidays)
To opt out you must:
- be aged 13 or older
- have access to your email or mobile phone
- have your NHS number or your postcode registered with your GP surgery
Remember: You can change your mind about your choice at any time.
Further information
To find out more about the benefits of data sharing, how data is protected, or to make/change your opt-out choice visit: https://www.nhs.uk/your-nhs-data-matters/ NHS Digital Information Standard DCB3058 Compliance with National Data Opt outs Modality Partnership Privacy Notice: https://www.modalitypartnership.nhs.uk/