| Ryde Health Clinic | 618444 |
|---|---|
| St Mary’s Hospital | 524081 |
| Patient Liaison Office – St Mary’s Hospital | 534420/534850 |
| Isle of Wight Police | 0845 045 45 45 |
| Police Confidential Helpline (To report non-emergency crime 24 hours) | 101 |
| Social Services | 566011 |
| Samaritans | 01722 323355 |
| Alcoholics Anonymous | 0845 769 7555 |
| Relate (Marriage Guidance) | 524402 |
| IRIS (For help and advice on problems relating to drugs and alcohol) | 526654 |
| Isle of Wight Youth Trust (Confidential counselling for young people) | 529569 |
| Citizens Advice Bureau | 0344 411 1444 |
| Wightcare (Life-line telephone scheme offering 24-hour emergency cover to elderly and disabled people) | 821105 |
| Dental Treatment Helpline | 111 |
| Isle of Wight CCG | 524081 |
| Support Empower Advocate Promote (SEAP) | 0330 440 9000 |
Isle find it
Long Term Condition Support Groups
Amputees
IOW Amputee Group
Health conditions covered – Congenital or acquired limb loss, all persons on the IOW
Contact
Sue Moody
07786653808
iowampsug@googlemail.com
Arthritis – Inflammatory
Isle of Wight Rheumatoid and Inflammatory Arthritis (NRAS) Group
Health conditions covered – Inflammatory Arthritis: Rheumatoid Arthritis, Psoriatic Arthritis, Ankylosing Spondylitis
Contact
Hayley Bartlett
07708469764
hayley@iwrias.org.uk
www.iwrias.org.uk
Isle of Wight Rheumatoid and Inflammatory Arthritis (NRAS) Group have a page and group set up on Facebook.
Asthma
Isle of Wight Asthma Swimgroup
Health conditions covered – asthma
The Isle of Wight Asthma Swimgroup was formed in 1984 by the Isle of Wight Branch of what is now Asthma UK to encourage people with asthma to enjoy exercise. Swimming is known to be the least provocative exercise for asthmatics.
Contact
Liz Bell
01983 564356
Cancer
John Cheverton Information and Support Centre, Earl Mounbatten Hospice
The centre is open to anyone and everyone affected in anyway by any potentially life limiting illness (this includes relatives, friends, carers and health care professionals). It is open Monday to Friday 10.00am to 4.00pm on a drop in basis and has been designed to offer contact, support, information, direction and help. Someone will always be available to listen to you and discuss your needs. We warmly welcome everyone to the centre or alternatively please telephone 01983 535319
email: infosupport@iwhospice.org
Living Well On Wight
Cancer changes everything… A Living Well Course can help you to gain a sense of control and make positive changes by finding your own way to live well with the impact of cancer. It has been designed to work alongside your medical treatment, providing you with support at any stage of your cancer journey; before, during and after treatment. It is offered free and is available to anyone and their close supporter whose life has been impacted by cancer.
Contact
Helpline 0845 123 2310
Penny Brohn Cancer Care: 01275 370 100
Email: info@pennybrohn.org
Bowel Cancer – Semi Colon Group, supported by Macmillan Cancer Care
Health conditions covered – Bowel cancer support, including carers
Contact
Mr A C Crowson
01983 528642
cjtinson@gmail.com
Applegate Breast Care Support Group
Health conditions covered – Breast Cancer
Contact
Mary Seymour
07814699470 or Breast Care Nurses 534562
mary_tutuila@uwclub.net
Head and neck cancer support group
Health conditions covered – All head and neck related cancer patients and their carers, family and friends
Contact
Mrs June Ring
Mrs Mary Seymour
01983 524186
isleofwight@wessexcancer.org
Lung cancer support group
Health conditions covered – Lung cancer patients, carers, family and friends
Contact
Mrs June Ring
Mrs Mary Seymour
01983 524186
isleofwight@wessexcancer.org
Prostate & other Urology Cancer Support Group, IW
Health conditions covered – Urological cancers but predominately prostate cancer
Contact
Dave Kiely
01983 407662
davekielyiow@aol.com
Radiotherapy Reunion Group
Health conditions covered – All patients, carers and friends of those who have received radiotherapy
Contact
Mrs June Ring
Mrs Mary Seymour
01983 524186
isleofwight@wessexcancer.org
Upper GI cancer Support Group
Health conditions covered – All those with upper gastrointestinal cancers, carers, friends and family
Contact
Mrs June Ring
Mrs Mary Seymour
01983 524186
isleofwight@wessexcancer.org
Skin cancer support group
Health conditions covered – All those with skin cancers, their carers, family and friends
Contact
Mrs June Ring
Mrs Mary Seymour
01983 524186
isleofwight@wessexcancer.org
Carers
Carers UK IW & Quay Carers
Health conditions covered – Unpaid Adult Carers of Adults
Contact
Elizabeth Martin/Soo Scott
01983 533173
carersiw@btconnect.com
Dementia
Alzheimer Café UK IOW Branch
Health conditions covered – Dementia – all types
Contact
Maggie Bennett
01983 220200
alzheimercafeiow@btconnect.com
www.alzheimercafeiow.org.uk
Facebook – AlzheimerCafeIOW
Twitter – @AzCafeIOW
Dementia Carer
Diabetes
Diabetes UK Isle Of Wight Voluntary Group
Health conditions covered – Diabetes
Contact
Richard Newnham
01983 290168
ricnewnham@onwight.net
Fibromyalgia
Isle of Wight Fibromyalgia Support Group
Health conditions covered
- Fibromyalgia
- Chronic Fatigue Syndrome
- ME
Contact
Karen Smith
0844 887 2346
iwfmsg.fibromates@gmail.com
www.isleofwightfibromyalgia.webs.com
Facebook Fibromates-Isle of Wight Fibromyalgia Support Group
Hearing Impairment
Action on Hearing Loss Sensory Service IOW
Health conditions covered
- Action on Hearing Loss Sensory Service Isle of Wight provides support services to adults living with hearing loss or dual hearing and sight loss on the Isle of Wight on behalf of the Isle of Wight Council
- diagnosed hearing loss (either privately or through the NHS)
- dual sensory loss (deafblind)
Contact
Ann Emery, Service Manager
01983 529533 , Textphone: 01983 529998
IOW@hearingloss.org.uk
www.actiononhearingloss.org.uk
Services include free home assessment and free equipment loan service based on the assessment of needs, mobility training, access to specialist advice and support for any one with a sensory loss, befriending and coffee mornings and monthly drop in clinics across the Island for maintenance of NHS hearing aids.
Heart Disease
Isle of Wight Heart Care Club
Health conditions covered – All heart conditions
Contact
Mrs Lyn Smith
01983 296091
lynsmith250@hotmail.co.uk
Neurological Conditions
Epilepsy Society (Isle of Wight)
Health conditions covered – Epilepsy
Contact
Dave Piggott
01983405825
davidpiggott@yahoo.co.uk
Headway Isle of Wight
Health conditions covered – Head injury. We support anyone who has suffered a brain injury, the families and carers.
Contact
Mrs Joy Cleightonhills
01983 874651
joy.headwayiow@gmail.com
Facebook – Headway IOW
Huntington’s Disease Association
Health conditions covered – Huntington’s Disease
Contact
Eve Payler
02380 612218
eve.payler@hda.org.uk
www.hda.org.uk
Motor Neurone Disease Association, Isle of Wight branch
Health conditions covered – Motor Neurone Disease
Contact
Maureen Martinez / Ann Marchant
01983 615 701 or 07922 12 34 16
mam_nfm@yahoo.co.uk
www.mndiw.btck.co.uk
Muscular Dystrophy Campaign, Isle of Wight Branch
Health Conditions Covered
- Becker muscular dystrophy
- Bethlem myopathy
- Central core disease
- Charcot-Marie-Tooth disease (CMT)
- Congenital muscular dystrophy (CMD)
- Congenital myasthenic syndromes
- Congenital myotonic dystrophy
- Duchenne muscular dystrophy
- Emery-Dreifuss muscular dystrophy
- Facioscapulohumeral muscular dystrophy (FSH)
- Fibre-type disproportion
- Fibrodysplasia ossificans progressiva (FOP)
- Inclusion body myositis (IBM)
- Juvenile dermatomyositis
- Limb girdle muscular dystrophies (LGMD)
- Limb girdle muscular dystrophy 1B (LGMD 1B)
- Limb girdle muscular dystrophy 1C (LGMD 1C)
- Limb girdle muscular dystrophy 2A (LGMD 2A)
- Limb girdle muscular dystrophy 2B (LGMD 2B)
- Limb-girdle muscular dystrophy 2I (LGMD 2I)
- Manifesting carriers of Duchenne muscular dystrophy
- McArdle disease
- Merosin-deficient congenital muscular dystrophy: MDC1A
- Metabolic disorders
- Minicore (multicore) myopathy
- Mitochondrial myopathies
- Myasthenia gravis
- Myopathy
- Myotonias
- Myotonic dystrophy
- Myotubular (centronuclear) myopathy
- Nemaline myopathy
- Oculopharyngeal muscular dystrophy (OPMD)
- Periodic paralyses
- Polymyositis, dermatomyositis and sarcoid myopathy
- Rigid spine syndrome
- Sarcoglycanopathies: LGMD2C, LGMD2D, LGMD2E and LGMD2F
- Spinal muscular atrophy (SMA)
- Ullrich congenital muscular dystrophy
Contact
Mr Colin M Baker
01983 242961
feathers455@hotmail.co.uk
www.muscular-dystrophy.org
Myasthenia Gravis Association (MGA) Isle of Wight branch
Health conditions covered
- Myasthenia Gravis(MG)
- Ocular Myasthenia
- Congenital Myasthenia
- Lambert Eaton Myasthenia Syndrome (LEMS)
Contact
Mrs Lynne Pitcher
01983 761265
piglettina@btopenworld.com
Parkinson’s UK, IOW Branch
Health conditions covered – Parkinson’s disease
Contact
Mr Ron Tweedie
884913
tweediern@onwight.net
Isle of Wight Association for Spina Bifida & Hydrocephalus
Health conditions covered
- Spina Bifida
- Hydrocephalus
Contact
Sylvia Griffiths
01983 863658
adrian.axford@gmail.com
www.iwasbah.com
www.facebook.com/pages/Isle-of-Wight-Association-for-Spina-Bifida-and-Hydrocephalus/585664281508543
Respiratory Disease
Breathe Easy Isle of Wight / BLF Active Isle of Wight
Health conditions covered – support for anyone managing and living with a Chronic Lung Condition
Contact
Andy Savage
Andy Savage 01983 810932
Respiratory Dept. 01983 552190
ajsavage67@yahoo.co.uk
British Lung Foundation www.lunguk.org
Facebook: Breathe Easy IOW
Cystic fibrosis Trust – Portsmouth and Isle of Wight branch
Health conditions covered – Cystic fibrosis
Contact
Sue Krug, Secretary
Sue Krug 023 92469104
CFT Helpline 0300 373 1000
enquiries@cysticfibrosis.org.uk
zlkruk@waitrose.com
Stroke
Isle of Wight stroke Club
Health conditions covered – stroke – CVA, TIA
Contact
Carole Greenham
Bob Stringer
01 983 869 100
enquiries@wightfightingstroke.org
www.wightfightingstroke.org
Stroke Support, Isle of Wight – The stroke Association
Health conditions covered – stroke – information, advice and support for stroke survivors and their close network to manage the impact of stroke
Contact
Mary Barton, Information, Advice and Support Co-ordinator
Maeve Fuller, Information, Advice and Support Co-ordinator
01983 898301
iow@stroke.org.uk
www.stroke.org
Communication Support, IW – The stroke Association
Health conditions covered – stroke –Support for those whose communication has been affected by stroke
Contact
Tina Cutting, Communication Support Co-ordinator
01983 612729
iow@stroke.org.uk
www.stroke.org
Visual Impairment
Isle of Wight Society for the Blind
Health conditions covered
- Visual Impairment – all aspects.
- Support to families and friends of people with a visual impairment
Contact
Estelle Thomas
01983 522205
enquiries@iwsb.org.uk
www.iwsb.org.uk
The website is currently being re written to take into account new services
Action on Hearing Loss Sensory Service IOW
Health conditions covered
- Action on Hearing Loss Sensory Service Isle of Wight provides support services to adults living with slight loss or dual hearing and sight loss on the Isle of Wight on behalf of the Isle of Wight Council.
- Diagnosed Sight loss (usually by a consultant ophthalmologist) Dual sensory loss (deafblind).
Contact
Ann Emery, Service Manager
01983 529533 , Textphone: 01983 529998
IOW@hearingloss.org.uk
www.actiononhearingloss.org.uk
Services include free home assessment and free equipment loan service based on the assessment of needs, mobility training, access to specialist advice and support for any one with a sensory loss, befriending and coffee mornings and monthly drop in clinics across the Island for maintenance of NHS hearing aids.
Clinical Commissioning Group (CCG)
Our local CCG is the Isle of Wight Clinical Commissioning Group which is located at:
Isle of Wight Clinical Commissioning Group
Building A
The Apex
St Cross Business Park
Newport
Isle of Wight PO30 5WN
Tel: 01983 552064